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Part 4 of 4: “Rasagiline (Teva) Trial for MSA-P: A Patient’s Perspective”
Rasagiline Mesylate 1 mg, sponsored by Teva Branded Pharmaceutical Products R&D, Inc., caught my attention. This trial aimed to evaluate the impact of rasagiline, a drug used for Parkinson’s disease, on people like me with MSA-P. Continue reading
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Part 3 of 4: “A Glimpse of Hope: My Perspective on the ATH434 Clinical Trial for MSA”
The ATH434 trial is a significant step forward in MSA research. For those of us living with this condition, every new trial, every bit of research, brings us closer to understanding MSA and potentially finding effective treatments. Continue reading
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Part 2 of 4: “Navigating New Horizons: My Perspective on the ONO-2808 Clinical Trial for MSA”
This study, aiming to evaluate the safety, tolerability, and efficacy of ONO-2808 in MSA patients, is a significant step in our quest for better treatment options. Continue reading
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“Hope on the Horizon: My Take on the TAK-341 Clinical Trial for MSA”
Living with Multiple System Atrophy (MSA) is like navigating through a thick fog — you’re never quite sure what lies ahead. When I heard about the clinical trial for a drug called TAK-341, it was like a ray of light piercing through that fog Continue reading
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“Living with Hope: My Journey with Multiple System Atrophy and the Right to Try Law”
However, the reality has been disheartening. Despite the law’s intent, the actual process of getting drug companies to comply with it is incredibly challenging. Continue reading
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The Lifeline of Love: How My Support Group Sustains Me Through MSA
There’s one invaluable treasure that has been my constant source of strength and hope – my support group, comprised of my loving family and incredible friends. Continue reading
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Eat, Drink, and Be Merry: Finding Joy in Holidays with MSA & Finding Strength in Togetherness
Holidays, for me, are more than just festivities; they’re a reminder of the beauty of life, the importance of family and friends, and the need to cherish every moment Continue reading
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“The Battle Against MSA: Understanding and Combating Neurodegenerative Disorders”
My most recent findings have led me to focus on Synucleinopathies as the “mechanism” to base my fight for life on. Here’s why: Continue reading
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Dealing with Disappointment and Emotional Pain When Things (Seemingly) Fall Apart
So we commit to moving forward, not because it is easy, but because it is necessary. Our dreams may have been shattered, but not our spirit. Our fears, though realized, will not claim victory over our resolve. I am left with no choice but to persevere, to continue the search for a clinical trial designed… Continue reading
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Understanding the Science and Hope Behind My Upcoming Clinical Trial
This clinical trial is formally termed (take a deep breath) a “Randomized Double-Blind Placebo-Controlled Adaptive Design Trial of Intrathecally Administered Autologous Mesenchymal Stem Cells in Multiple System Atrophy.” Quite a mouthful, right? Let’s dissect what this actually means: Continue reading
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Living Beyond the Diagnosis 