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MyTrial Journey: Week Two with Exenatide
I’m feeling cautiously optimistic—something I haven’t said in a long time. Week two of my journey with Exenatide has brought some unexpected changes, and while I don’t want to get ahead of myself, I feel it’s worth sharing Continue reading
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Part 2 of a 4 Part Series on the Importance of Caregivers to an MSA Sufferer: “The Evolving Challenges of Caregiving”
Understanding the Progression of MSA Multiple System Atrophy (MSA) is a disease marked by gradual but relentless progression. As it advances, the care needs of the patient intensify. Early symptoms like poor coordination and autonomic dysfunction evolve into more challenging issues such as severe mobility restrictions and speech difficulties. This progression is not just a Continue reading
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Part 3 of 4: “A Glimpse of Hope: My Perspective on the ATH434 Clinical Trial for MSA”
The ATH434 trial is a significant step forward in MSA research. For those of us living with this condition, every new trial, every bit of research, brings us closer to understanding MSA and potentially finding effective treatments. Continue reading
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Understanding the Science and Hope Behind My Upcoming Clinical Trial
This clinical trial is formally termed (take a deep breath) a “Randomized Double-Blind Placebo-Controlled Adaptive Design Trial of Intrathecally Administered Autologous Mesenchymal Stem Cells in Multiple System Atrophy.” Quite a mouthful, right? Let’s dissect what this actually means: Continue reading
Living Beyond the Diagnosis 