Clinical Trials for MSA
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The Pursuit of “The Holy Grail” – Penetrating the Blood-Brain Barrier in MSA Treatment
While the road ahead remains fraught with challenges and uncertainties, the pursuit of penetrating the BBB represents a beacon of hope for the MSA community. With each new discovery and breakthrough, we edge closer to unlocking the mysteries of this devastating disease and ushering in a new era of treatment possibilities Continue reading
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Exploring the Potential of Skeletal Muscle-Derived Brain-Derived Neurotrophic Factor (BDNF) in MSA: A Glimpse from a Patient’s Point of View
Multiple System Atrophy wreaks havoc on the body, causing a variety of debilitating symptoms such as muscle stiffness, tremors, and difficulty with coordination. One promising avenue of research explores the potential of BDNF, specifically when it is derived from skeletal muscle. Continue reading
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Red Light Therapy and MSA: Shedding (Red) Light on a Potential Treatment
Red light therapy, also known as photobiomodulation therapy, has a history dating back to the early 20th century when scientists began to study the effects of light on living organisms. Continue reading
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Navigating the Complexities of Multiple System Atrophy: A Journey Beyond Misdiagnosis
It all started with symptoms that mimicked Parkinson’s – tremors, stiffness, and slowness of movement. Like many, I was initially diagnosed with Parkinson’s Disease. However, as time progressed, the peculiarities of my condition began to surface, leading to a profound realization: this was something more complex. Continue reading
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Embracing Every Day #UnBreakable. Shifting the Focus from the Fear of the End to the Beauty of Now
Let’s make every day count. Let’s live, love, and laugh with all our might. Because in the end, it’s not the years in our life that matter, but the life in our years. Continue reading
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“New Year, Same Fight: “Facing the Future with MSA and the Quest for a Cure”
As I reflect on the past year and look towards the next, my commitment to helping others facing MSA remains unwavering. Whether it’s through participating in research, offering support, or simply sharing my stories, we’re in this together. Here’s to a year of hope, progress, and continued connection. Continue reading
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“Finding Hope Against MSA: My Understanding of the Compassionate Use Law”
The Difficulty in Access: It’s not easy to get these drugs. First, the drug has to be in a clinical trial, which means it’s still being tested for safety and effectiveness. But even if there’s a drug out there that might help, there’s no guarantee we can get it. Continue reading
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Part 4 of 4: “Rasagiline (Teva) Trial for MSA-P: A Patient’s Perspective”
Rasagiline Mesylate 1 mg, sponsored by Teva Branded Pharmaceutical Products R&D, Inc., caught my attention. This trial aimed to evaluate the impact of rasagiline, a drug used for Parkinson’s disease, on people like me with MSA-P. Continue reading
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Part 3 of 4: “A Glimpse of Hope: My Perspective on the ATH434 Clinical Trial for MSA”
The ATH434 trial is a significant step forward in MSA research. For those of us living with this condition, every new trial, every bit of research, brings us closer to understanding MSA and potentially finding effective treatments. Continue reading
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Part 2 of 4: “Navigating New Horizons: My Perspective on the ONO-2808 Clinical Trial for MSA”
This study, aiming to evaluate the safety, tolerability, and efficacy of ONO-2808 in MSA patients, is a significant step in our quest for better treatment options. Continue reading
Living Beyond the Diagnosis 