Terminal Diseases
-
Dear Future Self: A Letter from an MSA Patient
So, my dear future self, let this letter serve as a reminder that we are strong, resilient, and filled with hope. Our journey with MSA is far from over, and there will be more twists and turns ahead. But with the support of those who love us and the determination that burns within us, we… Continue reading
-
Navigating the Silence: Why Friends and Coworkers May Hesitate to Reach Out Amidst a Terminal Disease – Let’s Talk
One of the most significant hurdles you encounter is the hesitation friends and former coworkers have in reaching out to you. It’s something I’ve thought about extensively, and I want to share my perspective on why this happens and how we can navigate it together. Continue reading
-
Finding Hope Amidst MSA: The Power of a Strong Medical Team
When facing a rare and fatal disease like Multiple System Atrophy (MSA), the journey can be overwhelming, filled with uncertainty and fear. But amidst the darkness, there is a glimmer of hope that can shine brighter than ever – a strong medical team. In this post, we’ll explore the vital role played by three key… Continue reading
-
“Embracing the Clock: Living a Meaningful Life with Limited Time”
When you hear the words “you have five years to live,” it’s nothing short of a seismic shock to your entire existence. It’s not the kind of news you can easily prepare for, no matter how much you’ve contemplated the hypothetical scenarios of life and death. Continue reading
-
Unmasking the Silent Killer: Early Signs of Multiple System Atrophy (MSA)
In my journey, I’ve come to realize the utmost importance of early detection, not only for myself but for countless others who might be living with this insidious disease without knowing it. Continue reading
-
The Real Bitch is not the High BP, it’s the Low BP – Dealing with Orthostatic Hypotension
If your blood pressure is equal to or higher than 140/90 mm Hg, you have Stage 2 high blood pressure. Your provider will most likely recommend that you take medicines and recommend lifestyle changes. <> Continue reading
-
What The F@#k Happened?
I’m grateful for the support of my SPECTACULAR wife, my family, and my amazing friends and I’m hopeful as new treatments are being developed as we speak Continue reading
Living Beyond the Diagnosis 