Stem Cell Research
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“The Simple Hope for a Good Day: My Journey with MSA”
As someone living with MSA, I’ve learned to adjust my expectations accordingly. Gone are the days of grand aspirations and lofty goals. Instead, I’ve come to accept that sometimes all you can hope for is a “good day.” Continue reading
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The Pursuit of “The Holy Grail” – Penetrating the Blood-Brain Barrier in MSA Treatment
While the road ahead remains fraught with challenges and uncertainties, the pursuit of penetrating the BBB represents a beacon of hope for the MSA community. With each new discovery and breakthrough, we edge closer to unlocking the mysteries of this devastating disease and ushering in a new era of treatment possibilities Continue reading
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Navigating the Complexities of Multiple System Atrophy: A Journey Beyond Misdiagnosis
It all started with symptoms that mimicked Parkinson’s – tremors, stiffness, and slowness of movement. Like many, I was initially diagnosed with Parkinson’s Disease. However, as time progressed, the peculiarities of my condition began to surface, leading to a profound realization: this was something more complex. Continue reading
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“New Year, Same Fight: “Facing the Future with MSA and the Quest for a Cure”
As I reflect on the past year and look towards the next, my commitment to helping others facing MSA remains unwavering. Whether it’s through participating in research, offering support, or simply sharing my stories, we’re in this together. Here’s to a year of hope, progress, and continued connection. Continue reading
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“Finding Hope Against MSA: My Understanding of the Compassionate Use Law”
The Difficulty in Access: It’s not easy to get these drugs. First, the drug has to be in a clinical trial, which means it’s still being tested for safety and effectiveness. But even if there’s a drug out there that might help, there’s no guarantee we can get it. Continue reading
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Part 4 of 4: “Rasagiline (Teva) Trial for MSA-P: A Patient’s Perspective”
Rasagiline Mesylate 1 mg, sponsored by Teva Branded Pharmaceutical Products R&D, Inc., caught my attention. This trial aimed to evaluate the impact of rasagiline, a drug used for Parkinson’s disease, on people like me with MSA-P. Continue reading
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“Hope on the Horizon: My Take on the TAK-341 Clinical Trial for MSA”
Living with Multiple System Atrophy (MSA) is like navigating through a thick fog — you’re never quite sure what lies ahead. When I heard about the clinical trial for a drug called TAK-341, it was like a ray of light piercing through that fog Continue reading
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“The Battle Against MSA: Understanding and Combating Neurodegenerative Disorders”
My most recent findings have led me to focus on Synucleinopathies as the “mechanism” to base my fight for life on. Here’s why: Continue reading
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Dealing with Disappointment and Emotional Pain When Things (Seemingly) Fall Apart
So we commit to moving forward, not because it is easy, but because it is necessary. Our dreams may have been shattered, but not our spirit. Our fears, though realized, will not claim victory over our resolve. I am left with no choice but to persevere, to continue the search for a clinical trial designed… Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
Living Beyond the Diagnosis 