Stem Cell Research
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That Dam SPCA Commercial – Did You Notice? MSA Can Make Us Overly Emotional
Have you ever found yourself crying at a commercial, or laughing uncontrollably at something that wasn’t that funny? Maybe you’ve felt your emotions swing wildly, leaving you wondering, Is this just me, or is it the MSA? Continue reading
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The Tragic Quagmire That is MSA Clinical Trial’ville
In summary, ATH434 have shown promising interim results, conclusive statistically significant outcomes from ALL MSA clinical trials remain limited. Research is ongoing, and the medical community continues to seek effective treatments for this challenging condition. Continue reading
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The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
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MyTrial – Day 3 pm Agenda Part 2 – A Journey of Hope: Participating in the MyTrial Program – The Skin Biopsies
The MyTrial program has now shown me its cutting-edge research and innovative approaches to understanding and treating neurodegenerative diseases. The second step of the day involved skin biopsies, a pivotal part of the research process. Continue reading
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MyTrial – Day 3 pm Agenda Part 1 – A Journey Through Hope: Navigating Neurodegenerative Disease: Participating in the CLIMB Study
Understanding the immune system’s role is crucial, as it can help determine how inflammation might contribute to the progression of MSA. This kind of data is invaluable for developing new therapeutic strategies and potentially slowing the disease’s progression. Continue reading
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MyTrial – Day 2 am Agenda Part 2 – Navigating Multiple System Atrophy: A Journey Through the Longitudinal Study
Longitudinal Neuroimaging – Functional magnetic resonance imaging (fMRI) investigations of a longitudinal nature, where participants are scanned repeatedly over time and imaging data are obtained at more than one time-point, are essential to understanding functional changes and development in healthy and pathological brains Continue reading
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MyTrial – Day 2 am Agenda Part 1 – Navigating Multiple System Atrophy: A Journey Through the Harvard Biomarkers Study
The technology driving the MyTrial program is both advanced and innovative. By leveraging stunning technological breakthroughs, researchers can now envision a future where precision medicine is not just a concept but a reality for degenerative brain disorders. Continue reading
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MyTrial – Day 1 pm Agenda – Navigating the Journey: My Experience with a PBR06 PET Scan for Multiple System Atrophy
The PBR06 PET Scan is a specialized type of imaging that uses a radioactive tracer called PBR06 to visualize inflammation in the brain. PET stands for Positron Emission Tomography, a technique that helps doctors see how tissues and organs are functioning. Continue reading
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MyTrial Experience: Charting a New Path in MSA Treatment
“deep phenotyping,” and it involves tracking our disease progression with various clinical measurements, including biometrics, biomarkers from blood and spinal fluid, and advanced brain imaging techniques like MRI and PET scans. Continue reading
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“The Heartbreak of Hope: Navigating the Clinical Trials of MSA”
However, the reality is often far from hopeful. Each trial brings with it a cocktail of anticipation and anxiety, only to be met with disappointment and despair as we witness the lack of statistically relevant results. Our hopes rise and fall with each update, each email that brings news of yet another setback. Continue reading
Living Beyond the Diagnosis 