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MyTrial – Day 2 am Agenda Part 1 – Navigating Multiple System Atrophy: A Journey Through the Harvard Biomarkers Study
The technology driving the MyTrial program is both advanced and innovative. By leveraging stunning technological breakthroughs, researchers can now envision a future where precision medicine is not just a concept but a reality for degenerative brain disorders. Continue reading
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“This is exactly why I write this blog. I can’t stop now or ever, I just can’t”
there’s a remarkable resilience that emerges within the MSA community. This resilience is evident in the heartfelt comments and shared experiences found on my blog copingwithMSA.com and Facebook groups dedicated to supporting those affected by MSA. Continue reading
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“Embracing Memories: Finding Light in the Shadows”
For so long, I clung to the notion of making memories for myself, as if they were tokens to be cashed in upon some distant horizon. I yearn to amass experiences, to craft a narrative of my own making that I could cherish in the twilight of my days. Continue reading
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“Community Matters: How Connection Improves Life with MSA”
Just as Redwoods flourish in groves, humans too find their vitality, their purpose, in the warmth of connection. We need each other. We need companions, friends, partners, groups, tribes, families, communities—those who uplift us, support us, and stand by us through life’s trials and triumphs. Continue reading
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“Finding Joy in the Journey: Overcoming Depression with Love, Memories, and Everyday Moments”
As someone living with MSA, I understand all too well the weight of depression and the struggle to find meaning in each day. But through my journey, I’ve learned that it’s the small moments that truly matter Continue reading
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Finding Relief with Hydration and Regular Pooping: A Perspective on Managing Multiple System Atrophy
I want to share with you the profound impact that maintaining high levels of hydration and regular bowel movements have had on alleviating symptoms like orthostatic hypotension and providing systematic relief. Continue reading
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“Navigating the Complexity: Differentiating MSA from Similar Parkinsonisms”
The misdiagnosis of MSA as Parkinson’s Disease is more than a medical error; it’s a lost opportunity to combat a devastating disease at its onset. There’s an urgent need to enhance the understanding of MSA among medical professionals. Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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What The F@#k Happened?
I’m grateful for the support of my SPECTACULAR wife, my family, and my amazing friends and I’m hopeful as new treatments are being developed as we speak Continue reading
Living Beyond the Diagnosis 