Parkinsons Disease
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“Your MSA Diet: Balancing Nutrition for Neuroprotection”
While there’s no cure for MSA, certain diet modifications can play a supportive role in managing this condition. Continue reading
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“Navigating the Complexity: Differentiating MSA from Similar Parkinsonisms”
The misdiagnosis of MSA as Parkinson’s Disease is more than a medical error; it’s a lost opportunity to combat a devastating disease at its onset. There’s an urgent need to enhance the understanding of MSA among medical professionals. Continue reading
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“New Year, Same Fight: “Facing the Future with MSA and the Quest for a Cure”
As I reflect on the past year and look towards the next, my commitment to helping others facing MSA remains unwavering. Whether it’s through participating in research, offering support, or simply sharing my stories, we’re in this together. Here’s to a year of hope, progress, and continued connection. Continue reading
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“Finding Hope Against MSA: My Understanding of the Compassionate Use Law”
The Difficulty in Access: It’s not easy to get these drugs. First, the drug has to be in a clinical trial, which means it’s still being tested for safety and effectiveness. But even if there’s a drug out there that might help, there’s no guarantee we can get it. Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Fighting Fatigue: Building Energy Levels with MSA
In this post we will tackle the significant fatigue and lethargy of MSA. Discusses lifestyle adjustments, treatment options, and mindset shifts to reclaim as much energy as possible. Continue reading
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Living with Multiple System Atrophy (MSA): A 1 in 25,000 Lottery For Life
Imagine your body as an intricately designed machine, with numerous systems working harmoniously to keep you alive and well. One of the key systems that plays a vital role in maintaining your bodily functions is the autonomic nervous system (ANS). This system silently and diligently controls things you might not even think about consciously—your heart… Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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Nutrition and MSA: Eating Well for Improved Quality of Life
When I was first diagnosed with MSA, I was overwhelmed by the myriad of symptoms that affected various parts of my body. It quickly became evident that proper nutrition was crucial for managing these symptoms. Continue reading
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Dear Future Self: A Letter from an MSA Patient
So, my dear future self, let this letter serve as a reminder that we are strong, resilient, and filled with hope. Our journey with MSA is far from over, and there will be more twists and turns ahead. But with the support of those who love us and the determination that burns within us, we… Continue reading
Living Beyond the Diagnosis 