Parkinsons Disease
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The MyTrial Series – Home From Boston and Still Testing – The Accelerometer Home Evaluation
This detailed analysis provides a comprehensive view of my motor function, helping researchers quantify gait abnormalities, track disease progression, and develop tailored treatment plans. Continue reading
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MyTrial – Day 3 pm Agenda Part 1 – A Journey Through Hope: Navigating Neurodegenerative Disease: Participating in the CLIMB Study
Understanding the immune system’s role is crucial, as it can help determine how inflammation might contribute to the progression of MSA. This kind of data is invaluable for developing new therapeutic strategies and potentially slowing the disease’s progression. Continue reading
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MyTrial – Day 2 am Agenda Part 1 – Navigating Multiple System Atrophy: A Journey Through the Harvard Biomarkers Study
The technology driving the MyTrial program is both advanced and innovative. By leveraging stunning technological breakthroughs, researchers can now envision a future where precision medicine is not just a concept but a reality for degenerative brain disorders. Continue reading
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“The Simple Hope for a Good Day: My Journey with MSA”
As someone living with MSA, I’ve learned to adjust my expectations accordingly. Gone are the days of grand aspirations and lofty goals. Instead, I’ve come to accept that sometimes all you can hope for is a “good day.” Continue reading
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“Community Matters: How Connection Improves Life with MSA”
Just as Redwoods flourish in groves, humans too find their vitality, their purpose, in the warmth of connection. We need each other. We need companions, friends, partners, groups, tribes, families, communities—those who uplift us, support us, and stand by us through life’s trials and triumphs. Continue reading
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“Finding Joy in the Journey: Overcoming Depression with Love, Memories, and Everyday Moments”
As someone living with MSA, I understand all too well the weight of depression and the struggle to find meaning in each day. But through my journey, I’ve learned that it’s the small moments that truly matter Continue reading
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“Unveiling the Unseen: Shedding Light on the Emotional Toll of MSA”
For those living with MSA, or any terminal illness for that matter, depression is not just a possibility—it’s a looming shadow that stalks every waking moment. It’s the constant companion whispering dark thoughts into your mind, tempting you to surrender to the void. Continue reading
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“Invisible Battles: Standing with Those Fighting “Rare” Diseases Like Multiple System Atrophy (MSA)”
The cruel reality of MSA is that it offers no easy answers, no miracle cures, and painfully few treatment options. Unlike diseases that command widespread attention and research funding, such as cancer or Alzheimer’s, MSA languishes in the shadows of medical priorities. Continue reading
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Diving Deeper into the Gut-Brain Connection: Unveiling the Link to Autophagy in MSA
It’s like having a team of microscopic janitors constantly tidying up the cellular landscape, removing damaged or misfolded proteins, and recycling cellular components that are no longer needed. Continue reading
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Navigating the Complexities of Multiple System Atrophy: A Journey Beyond Misdiagnosis
It all started with symptoms that mimicked Parkinson’s – tremors, stiffness, and slowness of movement. Like many, I was initially diagnosed with Parkinson’s Disease. However, as time progressed, the peculiarities of my condition began to surface, leading to a profound realization: this was something more complex. Continue reading
Living Beyond the Diagnosis 