Parkinsonism
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The Lifeline of Love: How My Support Group Sustains Me Through MSA
There’s one invaluable treasure that has been my constant source of strength and hope – my support group, comprised of my loving family and incredible friends. Continue reading
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Eat, Drink, and Be Merry: Finding Joy in Holidays with MSA & Finding Strength in Togetherness
Holidays, for me, are more than just festivities; they’re a reminder of the beauty of life, the importance of family and friends, and the need to cherish every moment Continue reading
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“The Battle Against MSA: Understanding and Combating Neurodegenerative Disorders”
My most recent findings have led me to focus on Synucleinopathies as the “mechanism” to base my fight for life on. Here’s why: Continue reading
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Dealing with Disappointment and Emotional Pain When Things (Seemingly) Fall Apart
So we commit to moving forward, not because it is easy, but because it is necessary. Our dreams may have been shattered, but not our spirit. Our fears, though realized, will not claim victory over our resolve. I am left with no choice but to persevere, to continue the search for a clinical trial designed… Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Fighting Fatigue: Building Energy Levels with MSA
In this post we will tackle the significant fatigue and lethargy of MSA. Discusses lifestyle adjustments, treatment options, and mindset shifts to reclaim as much energy as possible. Continue reading
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Living with Multiple System Atrophy (MSA): A 1 in 25,000 Lottery For Life
Imagine your body as an intricately designed machine, with numerous systems working harmoniously to keep you alive and well. One of the key systems that plays a vital role in maintaining your bodily functions is the autonomic nervous system (ANS). This system silently and diligently controls things you might not even think about consciously—your heart… Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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Nutrition and MSA: Eating Well for Improved Quality of Life
When I was first diagnosed with MSA, I was overwhelmed by the myriad of symptoms that affected various parts of my body. It quickly became evident that proper nutrition was crucial for managing these symptoms. Continue reading
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Dear Future Self: A Letter from an MSA Patient
So, my dear future self, let this letter serve as a reminder that we are strong, resilient, and filled with hope. Our journey with MSA is far from over, and there will be more twists and turns ahead. But with the support of those who love us and the determination that burns within us, we… Continue reading
Living Beyond the Diagnosis 