Multiple System Atrophy
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MyTrial – Day 3 pm Agenda Part 1 – A Journey Through Hope: Navigating Neurodegenerative Disease: Participating in the CLIMB Study
Understanding the immune system’s role is crucial, as it can help determine how inflammation might contribute to the progression of MSA. This kind of data is invaluable for developing new therapeutic strategies and potentially slowing the disease’s progression. Continue reading
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An Introduction: “How CVAC Therapy Could Help MSA Sufferers”
Living with MSA can often make us feel isolated and uncertain about the future. By sharing my journey, I hope to bring a sense of community and optimism. If CVAC treatments can offer even a small improvement in our quality of life, it is worth exploring and sharing with others who might benefit. Continue reading
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MyTrial – Day 2 am Agenda Part 2 – Navigating Multiple System Atrophy: A Journey Through the Longitudinal Study
Longitudinal Neuroimaging – Functional magnetic resonance imaging (fMRI) investigations of a longitudinal nature, where participants are scanned repeatedly over time and imaging data are obtained at more than one time-point, are essential to understanding functional changes and development in healthy and pathological brains Continue reading
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MyTrial – Day 2 am Agenda Part 1 – Navigating Multiple System Atrophy: A Journey Through the Harvard Biomarkers Study
The technology driving the MyTrial program is both advanced and innovative. By leveraging stunning technological breakthroughs, researchers can now envision a future where precision medicine is not just a concept but a reality for degenerative brain disorders. Continue reading
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MyTrial – Day 1 pm Agenda – Navigating the Journey: My Experience with a PBR06 PET Scan for Multiple System Atrophy
The PBR06 PET Scan is a specialized type of imaging that uses a radioactive tracer called PBR06 to visualize inflammation in the brain. PET stands for Positron Emission Tomography, a technique that helps doctors see how tissues and organs are functioning. Continue reading
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MyTrial – Day 1 am Agenda – Understanding SY08 PET Scans in the Diagnosis and Management of Multiple System Atrophy (MSA)
MSA can be difficult to distinguish from other disorders such as Parkinson’s disease. SY08 PET scans can reveal characteristic patterns of brain activity that help differentiate MSA from other neurodegenerative conditions, enabling a more accurate diagnosis. Continue reading
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MyTrial Experience: Charting a New Path in MSA Treatment
“deep phenotyping,” and it involves tracking our disease progression with various clinical measurements, including biometrics, biomarkers from blood and spinal fluid, and advanced brain imaging techniques like MRI and PET scans. Continue reading
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“The Heartbreak of Hope: Navigating the Clinical Trials of MSA”
However, the reality is often far from hopeful. Each trial brings with it a cocktail of anticipation and anxiety, only to be met with disappointment and despair as we witness the lack of statistically relevant results. Our hopes rise and fall with each update, each email that brings news of yet another setback. Continue reading
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“Finding Purpose Amid Social Media Fatigue: A Perspective from an MSA Warrior”
For those battling social media fatigue, the incessant reminders of life’s fragility may seem overwhelming, burdensome even. Yet, within the echo chambers of our online spheres lies a beacon of light Continue reading
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“This is exactly why I write this blog. I can’t stop now or ever, I just can’t”
there’s a remarkable resilience that emerges within the MSA community. This resilience is evident in the heartfelt comments and shared experiences found on my blog copingwithMSA.com and Facebook groups dedicated to supporting those affected by MSA. Continue reading
Living Beyond the Diagnosis 