MSA
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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Nutrition and MSA: Eating Well for Improved Quality of Life
When I was first diagnosed with MSA, I was overwhelmed by the myriad of symptoms that affected various parts of my body. It quickly became evident that proper nutrition was crucial for managing these symptoms. Continue reading
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Dear Future Self: A Letter from an MSA Patient
So, my dear future self, let this letter serve as a reminder that we are strong, resilient, and filled with hope. Our journey with MSA is far from over, and there will be more twists and turns ahead. But with the support of those who love us and the determination that burns within us, we… Continue reading
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Navigating the Silence: Why Friends and Coworkers May Hesitate to Reach Out Amidst a Terminal Disease – Let’s Talk
One of the most significant hurdles you encounter is the hesitation friends and former coworkers have in reaching out to you. It’s something I’ve thought about extensively, and I want to share my perspective on why this happens and how we can navigate it together. Continue reading
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Finding Hope Amidst MSA: The Power of a Strong Medical Team
When facing a rare and fatal disease like Multiple System Atrophy (MSA), the journey can be overwhelming, filled with uncertainty and fear. But amidst the darkness, there is a glimmer of hope that can shine brighter than ever – a strong medical team. In this post, we’ll explore the vital role played by three key… Continue reading
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“Embracing the Clock: Living a Meaningful Life with Limited Time”
When you hear the words “you have five years to live,” it’s nothing short of a seismic shock to your entire existence. It’s not the kind of news you can easily prepare for, no matter how much you’ve contemplated the hypothetical scenarios of life and death. Continue reading
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Unmasking the Silent Killer: Early Signs of Multiple System Atrophy (MSA)
In my journey, I’ve come to realize the utmost importance of early detection, not only for myself but for countless others who might be living with this insidious disease without knowing it. Continue reading
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The Real Bitch is not the High BP, it’s the Low BP – Dealing with Orthostatic Hypotension
If your blood pressure is equal to or higher than 140/90 mm Hg, you have Stage 2 high blood pressure. Your provider will most likely recommend that you take medicines and recommend lifestyle changes. <> Continue reading
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We’re off to see the Wizard, the wonderful Wizard of Mayo (Clinic)
When there is only one girl in town, you date the crap out of her, and I’m headed to Rochester Minnesota to date the crap out of The Mayo Clinic. Continue reading
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A Promising Therapeutic Approach – Stem Cells
Ok, you pick yourself off the floor (For me, it was a little over a month), dust yourself off, and start the fight to save your life! Continue reading
Living Beyond the Diagnosis 