Harvard Biomarker Study
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The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
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Post 3 in a Series: My Journey with MyTrial – The First Steps Foralumab & Exenatide
After completing the initial battery of tests, my doctors identified two potential treatments to kick off my journey with MyTrial: Exenatide, a GLP1 agonist, and Foralumab, an anti-CD3 monoclonal antibody. Let me share why these treatments were chosen and what the doctors had to say about them. Continue reading
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The MyTrial Series: Time Spent Between MyTrial Visit 1 & 2 – May to November 2024
As I continue this journey, I remain committed to the MyTrial process, knowing that it’s a critical step towards finding personalized treatments that could significantly impact my life and the lives of others with MSA. I remind myself that MyTrial is a long-term commitment. The tests and evaluations conducted are thorough and require time to… Continue reading
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MyTrial – Day 1 pm Agenda – Navigating the Journey: My Experience with a PBR06 PET Scan for Multiple System Atrophy
The PBR06 PET Scan is a specialized type of imaging that uses a radioactive tracer called PBR06 to visualize inflammation in the brain. PET stands for Positron Emission Tomography, a technique that helps doctors see how tissues and organs are functioning. Continue reading
Living Beyond the Diagnosis 