Despair
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Living with MSA: The Hidden Weight of the Simple Question ‘How Are You?’
You see, I have Multiple System Atrophy (MSA). Every day feels like I’m walking closer and closer to the end. The motor skills, the balance, the dizziness, the fatigue — all of it is a reminder that my body is slowly betraying me. And yes, it scares me. It scares me a lot. But when… Continue reading
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“Living with a Terminal Disease – Funny, You Don’t Look Like You’re Dying”
In a strange way, that’s exactly what I’m going for. When people see me and don’t realize the battle, I’m waging every day, it means I’m winning small victories. For those of you who don’t know, I’m living with Multiple System Atrophy (MSA), Continue reading
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A Defiant Man’s War Against MSA: An Undefeated Demon
You ever feel like there’s a demon living inside you, ticking off parts of your body like it’s going through a grocery list? I do. It’s called Multiple System Atrophy. MSA—this relentless, fucking ruthless demon that leaves nothing untouched. It doesn’t care who you are, how strong you’ve been, how much you’ve fought. It’s undefeated…… Continue reading
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A Poem – “One More Day”
One more day to punch this damn thing in the face, to wake up angry and full of vinegar, to rage at what’s being stolen from me, but still, still, to get up, to hope. Continue reading
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“Get Busy Living, or Get Busy Dying”: A Journey with Multiple System Atrophy
Andy Dufresne’s words echo in my mind daily, serving as a poignant reminder of the choices we face, especially in the grip of adversity. For those of us battling Multiple System Atrophy (MSA), this choice is not just metaphorical but a literal crossroads we encounter every day. Continue reading
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“Embracing Empathy: Supporting Those Grappling with Suicidal Thoughts in Terminal Illness”
I can’t help but feel a deep sense of empathy. You see, I too am battling multiple system atrophy (MSA), and I understand all too well the physical and emotional toll it takes. It’s a relentless journey, filled with pain, frustration, and moments of despair. Continue reading
Living Beyond the Diagnosis 