Dealing with Depression
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Living with MSA: The Hidden Weight of the Simple Question ‘How Are You?’
You see, I have Multiple System Atrophy (MSA). Every day feels like I’m walking closer and closer to the end. The motor skills, the balance, the dizziness, the fatigue — all of it is a reminder that my body is slowly betraying me. And yes, it scares me. It scares me a lot. But when… Continue reading
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A Voice from the Shadows: Understanding the Silent Struggles of Chronic and Terminal Neurodegenerative Disease
Living with a chronic or terminal neurodegenerative disease like Multiple System Atrophy (MSA) is a battle fought on two fronts: the internal war waged against your own body and the external struggle of being understood in a world that can’t see your pain. Continue reading
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A Defiant Man’s War Against MSA: An Undefeated Demon
You ever feel like there’s a demon living inside you, ticking off parts of your body like it’s going through a grocery list? I do. It’s called Multiple System Atrophy. MSA—this relentless, fucking ruthless demon that leaves nothing untouched. It doesn’t care who you are, how strong you’ve been, how much you’ve fought. It’s undefeated…… Continue reading
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A Poem – “One More Day”
One more day to punch this damn thing in the face, to wake up angry and full of vinegar, to rage at what’s being stolen from me, but still, still, to get up, to hope. Continue reading
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A Poem: “The Resilient Soul” FuckMSA
In a quiet place, beneath a sky that never sleeps, There lived a soul, strong and free, yet caught in the grip of a cruel disease. MSA, they called it—a demon without mercy, A shadow that crept into life, stealing joy, leaving pain. Continue reading
Living Beyond the Diagnosis 