Clinical Trials for MSA
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“Living with Hope: My Journey with Multiple System Atrophy and the Right to Try Law”
However, the reality has been disheartening. Despite the law’s intent, the actual process of getting drug companies to comply with it is incredibly challenging. Continue reading
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“The Battle Against MSA: Understanding and Combating Neurodegenerative Disorders”
My most recent findings have led me to focus on Synucleinopathies as the “mechanism” to base my fight for life on. Here’s why: Continue reading
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Dealing with Disappointment and Emotional Pain When Things (Seemingly) Fall Apart
So we commit to moving forward, not because it is easy, but because it is necessary. Our dreams may have been shattered, but not our spirit. Our fears, though realized, will not claim victory over our resolve. I am left with no choice but to persevere, to continue the search for a clinical trial designed… Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Fighting Fatigue: Building Energy Levels with MSA
In this post we will tackle the significant fatigue and lethargy of MSA. Discusses lifestyle adjustments, treatment options, and mindset shifts to reclaim as much energy as possible. Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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Finding Hope Amidst MSA: The Power of a Strong Medical Team
When facing a rare and fatal disease like Multiple System Atrophy (MSA), the journey can be overwhelming, filled with uncertainty and fear. But amidst the darkness, there is a glimmer of hope that can shine brighter than ever – a strong medical team. In this post, we’ll explore the vital role played by three key… Continue reading
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We’re off to see the Wizard, the wonderful Wizard of Mayo (Clinic)
When there is only one girl in town, you date the crap out of her, and I’m headed to Rochester Minnesota to date the crap out of The Mayo Clinic. Continue reading
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A Promising Therapeutic Approach – Stem Cells
Ok, you pick yourself off the floor (For me, it was a little over a month), dust yourself off, and start the fight to save your life! Continue reading
Living Beyond the Diagnosis 