Clinical Trials for MSA
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When is the Right Time to Say “This Might Be the Last Time We See Each Other?”
I often find myself wrestling with a question that seems to linger on the edge of my mind, sometimes coming in the quiet hours of the night or in a rare moment of clarity during the day: When is the right time to say, “This might be the last time we see each other?” Continue reading
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That Dam SPCA Commercial – Did You Notice? MSA Can Make Us Overly Emotional
Have you ever found yourself crying at a commercial, or laughing uncontrollably at something that wasn’t that funny? Maybe you’ve felt your emotions swing wildly, leaving you wondering, Is this just me, or is it the MSA? Continue reading
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The Tragic Quagmire That is MSA Clinical Trial’ville
In summary, ATH434 have shown promising interim results, conclusive statistically significant outcomes from ALL MSA clinical trials remain limited. Research is ongoing, and the medical community continues to seek effective treatments for this challenging condition. Continue reading
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Continued from May-MyTrial Journey: Treatment Decision Week 1 Update
MyTrial at Brigham and Women’s Hospital. The innovative approach of Khurana Labs & The Harvard BioMarkers Study gave me hope then, and today, I’m excited to update you on my second trip to Boston and the beginning of my treatment journey. Continue reading
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“Living with a Terminal Disease – Funny, You Don’t Look Like You’re Dying”
In a strange way, that’s exactly what I’m going for. When people see me and don’t realize the battle, I’m waging every day, it means I’m winning small victories. For those of you who don’t know, I’m living with Multiple System Atrophy (MSA), Continue reading
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Fighting Back Against MSA — One Therapy at a Time. Introducing SCENAR – Self-Controlled Energo-Neuro Adaptive Regulator.
On June 1st, 2024, I began a new chapter in my journey with MSA, exploring therapies that most people have never even heard of. My days became filled with a regimen of CVAC (Cyclic Variations in Adaptive Conditioning), BEMER (Bio-Electro-Magnetic Energy Regulation), and Nuenerchi. Continue reading
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Post 7 in a Series: Exploring Alternative Therapies With CVAC for MSA Symptom Relief: Introducing Nuenerchi
Nuenerchi is a therapy designed to restore the body’s natural electrical pathways, which are often disrupted by injuries. This disruption can hinder cell communication, causing various issues such as muscle dormancy and impaired function. Nuenerchi aims to restore these connections, enabling muscles to fire properly and activating the body’s natural healing mechanisms. Continue reading
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The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
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Defiantly Opposing the Comment: “I’m not scared of dying, but I am scared of dying with MSA.” Fuck MSA: It Shall Not Win!
The fear of becoming a mere shadow of who we once were haunts us all. As one member of our Facebook group poignantly expressed, it’s the loss of quality of life and independence that makes this journey so excruciating. Continue reading
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Post 6 in a Series: Orthostatic Hypotension and the Unexpected Benefits of CVAC Therapy
Imagine trying to go about your daily activities—simple tasks like getting out of bed, taking a shower, or even just standing up to cook a meal—only to be hit with a wave of dizziness or, worse, to lose consciousness Continue reading
Living Beyond the Diagnosis 