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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Fighting Fatigue: Building Energy Levels with MSA
In this post we will tackle the significant fatigue and lethargy of MSA. Discusses lifestyle adjustments, treatment options, and mindset shifts to reclaim as much energy as possible. Continue reading
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Living with Multiple System Atrophy (MSA): A 1 in 25,000 Lottery For Life
Imagine your body as an intricately designed machine, with numerous systems working harmoniously to keep you alive and well. One of the key systems that plays a vital role in maintaining your bodily functions is the autonomic nervous system (ANS). This system silently and diligently controls things you might not even think about consciously—your heart… Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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Nutrition and MSA: Eating Well for Improved Quality of Life
When I was first diagnosed with MSA, I was overwhelmed by the myriad of symptoms that affected various parts of my body. It quickly became evident that proper nutrition was crucial for managing these symptoms. Continue reading
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Dear Future Self: A Letter from an MSA Patient
So, my dear future self, let this letter serve as a reminder that we are strong, resilient, and filled with hope. Our journey with MSA is far from over, and there will be more twists and turns ahead. But with the support of those who love us and the determination that burns within us, we… Continue reading
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Navigating the Silence: Why Friends and Coworkers May Hesitate to Reach Out Amidst a Terminal Disease – Let’s Talk
One of the most significant hurdles you encounter is the hesitation friends and former coworkers have in reaching out to you. It’s something I’ve thought about extensively, and I want to share my perspective on why this happens and how we can navigate it together. Continue reading
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Finding Hope Amidst MSA: The Power of a Strong Medical Team
When facing a rare and fatal disease like Multiple System Atrophy (MSA), the journey can be overwhelming, filled with uncertainty and fear. But amidst the darkness, there is a glimmer of hope that can shine brighter than ever – a strong medical team. In this post, we’ll explore the vital role played by three key… Continue reading
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“Embracing the Clock: Living a Meaningful Life with Limited Time”
When you hear the words “you have five years to live,” it’s nothing short of a seismic shock to your entire existence. It’s not the kind of news you can easily prepare for, no matter how much you’ve contemplated the hypothetical scenarios of life and death. Continue reading
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Unmasking the Silent Killer: Early Signs of Multiple System Atrophy (MSA)
In my journey, I’ve come to realize the utmost importance of early detection, not only for myself but for countless others who might be living with this insidious disease without knowing it. Continue reading
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Living Beyond the Diagnosis 