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“This is exactly why I write this blog. I can’t stop now or ever, I just can’t”
there’s a remarkable resilience that emerges within the MSA community. This resilience is evident in the heartfelt comments and shared experiences found on my blog copingwithMSA.com and Facebook groups dedicated to supporting those affected by MSA. Continue reading
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“Embracing Memories: Finding Light in the Shadows”
For so long, I clung to the notion of making memories for myself, as if they were tokens to be cashed in upon some distant horizon. I yearn to amass experiences, to craft a narrative of my own making that I could cherish in the twilight of my days. Continue reading
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MSA: Battling the Unseen Enemy with Courage and Compassion
At times, the weight of it all feels unbearable, and thoughts of ending my own life have crossed my mind. It’s hard to see the light at the end of the tunnel when faced with such overwhelming darkness. Yet, in those moments of despair, I find strength in the love of those around me. Continue reading
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“Embracing Empathy: Supporting Those Grappling with Suicidal Thoughts in Terminal Illness”
I can’t help but feel a deep sense of empathy. You see, I too am battling multiple system atrophy (MSA), and I understand all too well the physical and emotional toll it takes. It’s a relentless journey, filled with pain, frustration, and moments of despair. Continue reading
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“The Simple Hope for a Good Day: My Journey with MSA”
As someone living with MSA, I’ve learned to adjust my expectations accordingly. Gone are the days of grand aspirations and lofty goals. Instead, I’ve come to accept that sometimes all you can hope for is a “good day.” Continue reading
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“Community Matters: How Connection Improves Life with MSA”
Just as Redwoods flourish in groves, humans too find their vitality, their purpose, in the warmth of connection. We need each other. We need companions, friends, partners, groups, tribes, families, communities—those who uplift us, support us, and stand by us through life’s trials and triumphs. Continue reading
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“Finding Joy in the Journey: Overcoming Depression with Love, Memories, and Everyday Moments”
As someone living with MSA, I understand all too well the weight of depression and the struggle to find meaning in each day. But through my journey, I’ve learned that it’s the small moments that truly matter Continue reading
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“Unveiling the Unseen: Shedding Light on the Emotional Toll of MSA”
For those living with MSA, or any terminal illness for that matter, depression is not just a possibility—it’s a looming shadow that stalks every waking moment. It’s the constant companion whispering dark thoughts into your mind, tempting you to surrender to the void. Continue reading
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“Invisible Battles: Standing with Those Fighting “Rare” Diseases Like Multiple System Atrophy (MSA)”
The cruel reality of MSA is that it offers no easy answers, no miracle cures, and painfully few treatment options. Unlike diseases that command widespread attention and research funding, such as cancer or Alzheimer’s, MSA languishes in the shadows of medical priorities. Continue reading
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Finding Relief with Hydration and Regular Pooping: A Perspective on Managing Multiple System Atrophy
I want to share with you the profound impact that maintaining high levels of hydration and regular bowel movements have had on alleviating symptoms like orthostatic hypotension and providing systematic relief. Continue reading
Resources
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Parkinson & Movement Disorder Alliance
Clinical Trials.Gov (Sorted by MSA)
Living Beyond the Diagnosis 