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Embracing Mobility with MSA: My Journey with “VanGo”
I want to share my story, not as a solution for everyone but as a beacon of hope. After much deliberation and consideration, we invested in a Class B Coachman LI3 van, affectionately named “VanGo.” This van has revolutionized my life, offering a newfound sense of freedom and security Continue reading
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Post 3 in a Series: My Journey with MyTrial – The First Steps Foralumab & Exenatide
After completing the initial battery of tests, my doctors identified two potential treatments to kick off my journey with MyTrial: Exenatide, a GLP1 agonist, and Foralumab, an anti-CD3 monoclonal antibody. Let me share why these treatments were chosen and what the doctors had to say about them. Continue reading
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Post 5 in a Series – Exploring New Horizons with Bio-Modulation: A Six-Month Treatment Diary
Over the past 60 days, CVAC therapy has been a pleasant surprise for me, particularly in addressing the frequent episodes of orthostatic hypotension I was experiencing. I used to face these episodes two or three times a week, often resulting in blackouts. Remarkably, I haven’t had a single episode since starting CVAC therapy. Continue reading
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Post 4 in a Series – Exploring Bio Modulation and the M.E.A.D. Analysis in CVAC: A Six-Month Treatment Diary
I am planning to integrate Bio Modulation therapy with my current CVAC (Cyclic Variations in Adaptive Conditioning) therapy starting July 1st 2024. The idea is that by improving my body’s energetic state, I can enhance the effectiveness of other treatments, like CVAC. The clinician also suggested seeing a biological dentist to address potential dental issues… Continue reading
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Post 3 in a Series – Finishing Up Month 1 of CVAC Therapy: A Six-Month Treatment Diary
In these final weeks of my first month, my body has undergone significant changes. At the lower levels of CVAC therapy, my cells have been experiencing a greater flushing of metabolic waste and inflammation. It’s like a deep cleaning for my cellular system, and I’ve definitely noticed some peculiar changes. Continue reading
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The MyTrial Series: Time Spent Between MyTrial Visit 1 & 2 – May to November 2024
As I continue this journey, I remain committed to the MyTrial process, knowing that it’s a critical step towards finding personalized treatments that could significantly impact my life and the lives of others with MSA. I remind myself that MyTrial is a long-term commitment. The tests and evaluations conducted are thorough and require time to… Continue reading
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Post 2 in a Series – My First 2 Weeks of CVAC Therapy: A Six-Month Treatment Diary
As I continue this CVAC therapy journey, I am excited to share my progress, or lack thereof, with you all. While it’s still too early to draw definitive conclusions, the initial signs are promising. These sessions have already contributed to an improved sense of well-being and a slight enhancement in my physical abilities. Continue reading
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The MyTrial Series – Home From Boston and Still Testing – The Accelerometer Home Evaluation
This detailed analysis provides a comprehensive view of my motor function, helping researchers quantify gait abnormalities, track disease progression, and develop tailored treatment plans. Continue reading
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Embracing Father’s Day with MSA: A Journey of Love, Hope, and Family
Now, with MSA as a constant companion, the time I spend with my wife, kids, and grandkids has taken on an even deeper significance. These moments are what I live for. Each smile, each hug, each shared story is a precious gift. Time has become the most precious commodity, and I cherish every second. Continue reading
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Post 1 in a Series – CVAC Therapy and MSA: A Six-Month Treatment Diary
Starting any new treatment can be both exciting and nerve-wracking, and my first appointment at Ascent Adaptation & Regeneration was no different. The process began with a comprehensive cellular integrity (Bio-impedance) analysis, a vital step in understanding my cellular health. Continue reading
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Living Beyond the Diagnosis 