Stem Cell Research
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MyTrial – Day 1 pm Agenda – Navigating the Journey: My Experience with a PBR06 PET Scan for Multiple System Atrophy
The PBR06 PET Scan is a specialized type of imaging that uses a radioactive tracer called PBR06 to visualize inflammation in the brain. PET stands for Positron Emission Tomography, a technique that helps doctors see how tissues and organs are functioning. Continue reading
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MyTrial – Day 1 am Agenda – Understanding SY08 PET Scans in the Diagnosis and Management of Multiple System Atrophy (MSA)
MSA can be difficult to distinguish from other disorders such as Parkinson’s disease. SY08 PET scans can reveal characteristic patterns of brain activity that help differentiate MSA from other neurodegenerative conditions, enabling a more accurate diagnosis. Continue reading
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MyTrial Experience: Charting a New Path in MSA Treatment
“deep phenotyping,” and it involves tracking our disease progression with various clinical measurements, including biometrics, biomarkers from blood and spinal fluid, and advanced brain imaging techniques like MRI and PET scans. Continue reading
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“The Heartbreak of Hope: Navigating the Clinical Trials of MSA”
However, the reality is often far from hopeful. Each trial brings with it a cocktail of anticipation and anxiety, only to be met with disappointment and despair as we witness the lack of statistically relevant results. Our hopes rise and fall with each update, each email that brings news of yet another setback. Continue reading
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“Finding Purpose Amid Social Media Fatigue: A Perspective from an MSA Warrior”
For those battling social media fatigue, the incessant reminders of life’s fragility may seem overwhelming, burdensome even. Yet, within the echo chambers of our online spheres lies a beacon of light Continue reading
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MSA: Battling the Unseen Enemy with Courage and Compassion
At times, the weight of it all feels unbearable, and thoughts of ending my own life have crossed my mind. It’s hard to see the light at the end of the tunnel when faced with such overwhelming darkness. Yet, in those moments of despair, I find strength in the love of those around me. Continue reading
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“The Simple Hope for a Good Day: My Journey with MSA”
As someone living with MSA, I’ve learned to adjust my expectations accordingly. Gone are the days of grand aspirations and lofty goals. Instead, I’ve come to accept that sometimes all you can hope for is a “good day.” Continue reading
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The Pursuit of “The Holy Grail” – Penetrating the Blood-Brain Barrier in MSA Treatment
While the road ahead remains fraught with challenges and uncertainties, the pursuit of penetrating the BBB represents a beacon of hope for the MSA community. With each new discovery and breakthrough, we edge closer to unlocking the mysteries of this devastating disease and ushering in a new era of treatment possibilities Continue reading
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Exploring the Potential of Skeletal Muscle-Derived Brain-Derived Neurotrophic Factor (BDNF) in MSA: A Glimpse from a Patient’s Point of View
Multiple System Atrophy wreaks havoc on the body, causing a variety of debilitating symptoms such as muscle stiffness, tremors, and difficulty with coordination. One promising avenue of research explores the potential of BDNF, specifically when it is derived from skeletal muscle. Continue reading
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Navigating the Complexities of Multiple System Atrophy: A Journey Beyond Misdiagnosis
It all started with symptoms that mimicked Parkinson’s – tremors, stiffness, and slowness of movement. Like many, I was initially diagnosed with Parkinson’s Disease. However, as time progressed, the peculiarities of my condition began to surface, leading to a profound realization: this was something more complex. Continue reading
Living Beyond the Diagnosis 