Stem Cell Research
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That Dam SPCA Commercial – Did You Notice? MSA Can Make Us Overly Emotional
Have you ever found yourself crying at a commercial, or laughing uncontrollably at something that wasn’t that funny? Maybe you’ve felt your emotions swing wildly, leaving you wondering, Is this just me, or is it the MSA? Continue reading
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The Tragic Quagmire That is MSA Clinical Trial’ville
In summary, ATH434 have shown promising interim results, conclusive statistically significant outcomes from ALL MSA clinical trials remain limited. Research is ongoing, and the medical community continues to seek effective treatments for this challenging condition. Continue reading
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The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
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Post 5 in a Series – Exploring New Horizons with Bio-Modulation: A Six-Month Treatment Diary
Over the past 60 days, CVAC therapy has been a pleasant surprise for me, particularly in addressing the frequent episodes of orthostatic hypotension I was experiencing. I used to face these episodes two or three times a week, often resulting in blackouts. Remarkably, I haven’t had a single episode since starting CVAC therapy. Continue reading
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Post 4 in a Series – Exploring Bio Modulation and the M.E.A.D. Analysis in CVAC: A Six-Month Treatment Diary
I am planning to integrate Bio Modulation therapy with my current CVAC (Cyclic Variations in Adaptive Conditioning) therapy starting July 1st 2024. The idea is that by improving my body’s energetic state, I can enhance the effectiveness of other treatments, like CVAC. The clinician also suggested seeing a biological dentist to address potential dental issues… Continue reading
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Post 3 in a Series – Finishing Up Month 1 of CVAC Therapy: A Six-Month Treatment Diary
In these final weeks of my first month, my body has undergone significant changes. At the lower levels of CVAC therapy, my cells have been experiencing a greater flushing of metabolic waste and inflammation. It’s like a deep cleaning for my cellular system, and I’ve definitely noticed some peculiar changes. Continue reading
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The MyTrial Series: Time Spent Between MyTrial Visit 1 & 2 – May to November 2024
As I continue this journey, I remain committed to the MyTrial process, knowing that it’s a critical step towards finding personalized treatments that could significantly impact my life and the lives of others with MSA. I remind myself that MyTrial is a long-term commitment. The tests and evaluations conducted are thorough and require time to… Continue reading
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Embracing Father’s Day with MSA: A Journey of Love, Hope, and Family
Now, with MSA as a constant companion, the time I spend with my wife, kids, and grandkids has taken on an even deeper significance. These moments are what I live for. Each smile, each hug, each shared story is a precious gift. Time has become the most precious commodity, and I cherish every second. Continue reading
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MyTrial – Day 3 pm Agenda Part 2 – A Journey of Hope: Participating in the MyTrial Program – The Skin Biopsies
The MyTrial program has now shown me its cutting-edge research and innovative approaches to understanding and treating neurodegenerative diseases. The second step of the day involved skin biopsies, a pivotal part of the research process. Continue reading
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MyTrial – Day 2 am Agenda Part 2 – Navigating Multiple System Atrophy: A Journey Through the Longitudinal Study
Longitudinal Neuroimaging – Functional magnetic resonance imaging (fMRI) investigations of a longitudinal nature, where participants are scanned repeatedly over time and imaging data are obtained at more than one time-point, are essential to understanding functional changes and development in healthy and pathological brains Continue reading
Living Beyond the Diagnosis 