MSA Treatments
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“Get Busy Living, or Get Busy Dying”: A Journey with Multiple System Atrophy
Andy Dufresne’s words echo in my mind daily, serving as a poignant reminder of the choices we face, especially in the grip of adversity. For those of us battling Multiple System Atrophy (MSA), this choice is not just metaphorical but a literal crossroads we encounter every day. Continue reading
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The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
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Defiantly Opposing the Comment: “I’m not scared of dying, but I am scared of dying with MSA.” Fuck MSA: It Shall Not Win!
The fear of becoming a mere shadow of who we once were haunts us all. As one member of our Facebook group poignantly expressed, it’s the loss of quality of life and independence that makes this journey so excruciating. Continue reading
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Post 6 in a Series: Orthostatic Hypotension and the Unexpected Benefits of CVAC Therapy
Imagine trying to go about your daily activities—simple tasks like getting out of bed, taking a shower, or even just standing up to cook a meal—only to be hit with a wave of dizziness or, worse, to lose consciousness Continue reading
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Post 3 in a Series: My Journey with MyTrial – The First Steps Foralumab & Exenatide
After completing the initial battery of tests, my doctors identified two potential treatments to kick off my journey with MyTrial: Exenatide, a GLP1 agonist, and Foralumab, an anti-CD3 monoclonal antibody. Let me share why these treatments were chosen and what the doctors had to say about them. Continue reading
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Post 5 in a Series – Exploring New Horizons with Bio-Modulation: A Six-Month Treatment Diary
Over the past 60 days, CVAC therapy has been a pleasant surprise for me, particularly in addressing the frequent episodes of orthostatic hypotension I was experiencing. I used to face these episodes two or three times a week, often resulting in blackouts. Remarkably, I haven’t had a single episode since starting CVAC therapy. Continue reading
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Post 4 in a Series – Exploring Bio Modulation and the M.E.A.D. Analysis in CVAC: A Six-Month Treatment Diary
I am planning to integrate Bio Modulation therapy with my current CVAC (Cyclic Variations in Adaptive Conditioning) therapy starting July 1st 2024. The idea is that by improving my body’s energetic state, I can enhance the effectiveness of other treatments, like CVAC. The clinician also suggested seeing a biological dentist to address potential dental issues… Continue reading
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Post 3 in a Series – Finishing Up Month 1 of CVAC Therapy: A Six-Month Treatment Diary
In these final weeks of my first month, my body has undergone significant changes. At the lower levels of CVAC therapy, my cells have been experiencing a greater flushing of metabolic waste and inflammation. It’s like a deep cleaning for my cellular system, and I’ve definitely noticed some peculiar changes. Continue reading
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The MyTrial Series: Time Spent Between MyTrial Visit 1 & 2 – May to November 2024
As I continue this journey, I remain committed to the MyTrial process, knowing that it’s a critical step towards finding personalized treatments that could significantly impact my life and the lives of others with MSA. I remind myself that MyTrial is a long-term commitment. The tests and evaluations conducted are thorough and require time to… Continue reading
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Post 2 in a Series – My First 2 Weeks of CVAC Therapy: A Six-Month Treatment Diary
As I continue this CVAC therapy journey, I am excited to share my progress, or lack thereof, with you all. While it’s still too early to draw definitive conclusions, the initial signs are promising. These sessions have already contributed to an improved sense of well-being and a slight enhancement in my physical abilities. Continue reading
Living Beyond the Diagnosis 