MSA Clinical Trials
-
Living with MSA: The Hidden Weight of the Simple Question ‘How Are You?’
You see, I have Multiple System Atrophy (MSA). Every day feels like I’m walking closer and closer to the end. The motor skills, the balance, the dizziness, the fatigue — all of it is a reminder that my body is slowly betraying me. And yes, it scares me. It scares me a lot. But when… Continue reading
-
That Dam SPCA Commercial – Did You Notice? MSA Can Make Us Overly Emotional
Have you ever found yourself crying at a commercial, or laughing uncontrollably at something that wasn’t that funny? Maybe you’ve felt your emotions swing wildly, leaving you wondering, Is this just me, or is it the MSA? Continue reading
-
The Tragic Quagmire That is MSA Clinical Trial’ville
In summary, ATH434 have shown promising interim results, conclusive statistically significant outcomes from ALL MSA clinical trials remain limited. Research is ongoing, and the medical community continues to seek effective treatments for this challenging condition. Continue reading
-
Continued from May-MyTrial Journey: Treatment Decision Week 1 Update
MyTrial at Brigham and Women’s Hospital. The innovative approach of Khurana Labs & The Harvard BioMarkers Study gave me hope then, and today, I’m excited to update you on my second trip to Boston and the beginning of my treatment journey. Continue reading
-
Fighting Back Against MSA — One Therapy at a Time. Introducing SCENAR – Self-Controlled Energo-Neuro Adaptive Regulator.
On June 1st, 2024, I began a new chapter in my journey with MSA, exploring therapies that most people have never even heard of. My days became filled with a regimen of CVAC (Cyclic Variations in Adaptive Conditioning), BEMER (Bio-Electro-Magnetic Energy Regulation), and Nuenerchi. Continue reading
-
Post 7 in a Series: Exploring Alternative Therapies With CVAC for MSA Symptom Relief: Introducing Nuenerchi
Nuenerchi is a therapy designed to restore the body’s natural electrical pathways, which are often disrupted by injuries. This disruption can hinder cell communication, causing various issues such as muscle dormancy and impaired function. Nuenerchi aims to restore these connections, enabling muscles to fire properly and activating the body’s natural healing mechanisms. Continue reading
-
The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
-
Defiantly Opposing the Comment: “I’m not scared of dying, but I am scared of dying with MSA.” Fuck MSA: It Shall Not Win!
The fear of becoming a mere shadow of who we once were haunts us all. As one member of our Facebook group poignantly expressed, it’s the loss of quality of life and independence that makes this journey so excruciating. Continue reading
-
Post 6 in a Series: Orthostatic Hypotension and the Unexpected Benefits of CVAC Therapy
Imagine trying to go about your daily activities—simple tasks like getting out of bed, taking a shower, or even just standing up to cook a meal—only to be hit with a wave of dizziness or, worse, to lose consciousness Continue reading
-
Post 3 in a Series: My Journey with MyTrial – The First Steps Foralumab & Exenatide
After completing the initial battery of tests, my doctors identified two potential treatments to kick off my journey with MyTrial: Exenatide, a GLP1 agonist, and Foralumab, an anti-CD3 monoclonal antibody. Let me share why these treatments were chosen and what the doctors had to say about them. Continue reading
Living Beyond the Diagnosis 