Early Signs of MSA
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MyTrial – Day 2 am Agenda Part 2 – Navigating Multiple System Atrophy: A Journey Through the Longitudinal Study
Longitudinal Neuroimaging – Functional magnetic resonance imaging (fMRI) investigations of a longitudinal nature, where participants are scanned repeatedly over time and imaging data are obtained at more than one time-point, are essential to understanding functional changes and development in healthy and pathological brains Continue reading
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MyTrial – Day 2 am Agenda Part 1 – Navigating Multiple System Atrophy: A Journey Through the Harvard Biomarkers Study
The technology driving the MyTrial program is both advanced and innovative. By leveraging stunning technological breakthroughs, researchers can now envision a future where precision medicine is not just a concept but a reality for degenerative brain disorders. Continue reading
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MyTrial – Day 1 pm Agenda – Navigating the Journey: My Experience with a PBR06 PET Scan for Multiple System Atrophy
The PBR06 PET Scan is a specialized type of imaging that uses a radioactive tracer called PBR06 to visualize inflammation in the brain. PET stands for Positron Emission Tomography, a technique that helps doctors see how tissues and organs are functioning. Continue reading
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“The Simple Hope for a Good Day: My Journey with MSA”
As someone living with MSA, I’ve learned to adjust my expectations accordingly. Gone are the days of grand aspirations and lofty goals. Instead, I’ve come to accept that sometimes all you can hope for is a “good day.” Continue reading
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“Community Matters: How Connection Improves Life with MSA”
Just as Redwoods flourish in groves, humans too find their vitality, their purpose, in the warmth of connection. We need each other. We need companions, friends, partners, groups, tribes, families, communities—those who uplift us, support us, and stand by us through life’s trials and triumphs. Continue reading
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“Finding Joy in the Journey: Overcoming Depression with Love, Memories, and Everyday Moments”
As someone living with MSA, I understand all too well the weight of depression and the struggle to find meaning in each day. But through my journey, I’ve learned that it’s the small moments that truly matter Continue reading
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“Unveiling the Unseen: Shedding Light on the Emotional Toll of MSA”
For those living with MSA, or any terminal illness for that matter, depression is not just a possibility—it’s a looming shadow that stalks every waking moment. It’s the constant companion whispering dark thoughts into your mind, tempting you to surrender to the void. Continue reading
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Finding Relief with Hydration and Regular Pooping: A Perspective on Managing Multiple System Atrophy
I want to share with you the profound impact that maintaining high levels of hydration and regular bowel movements have had on alleviating symptoms like orthostatic hypotension and providing systematic relief. Continue reading
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Understanding Micrographia in Multiple System Atrophy (MSA): Causes and Coping Strategies
Micrographia, characterized by small and cramped handwriting, presents itself as a frequent symptom among individuals diagnosed with Multiple System Atrophy (MSA). This condition, while often overlooked, significantly impacts the daily lives of those affected. Continue reading
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Exploring the Potential of Skeletal Muscle-Derived Brain-Derived Neurotrophic Factor (BDNF) in MSA: A Glimpse from a Patient’s Point of View
Multiple System Atrophy wreaks havoc on the body, causing a variety of debilitating symptoms such as muscle stiffness, tremors, and difficulty with coordination. One promising avenue of research explores the potential of BDNF, specifically when it is derived from skeletal muscle. Continue reading
Living Beyond the Diagnosis 