Despair with a Terminal Illness
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“The Heartbreak of Hope: Navigating the Clinical Trials of MSA”
However, the reality is often far from hopeful. Each trial brings with it a cocktail of anticipation and anxiety, only to be met with disappointment and despair as we witness the lack of statistically relevant results. Our hopes rise and fall with each update, each email that brings news of yet another setback. Continue reading
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“Finding Purpose Amid Social Media Fatigue: A Perspective from an MSA Warrior”
For those battling social media fatigue, the incessant reminders of life’s fragility may seem overwhelming, burdensome even. Yet, within the echo chambers of our online spheres lies a beacon of light Continue reading
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“This is exactly why I write this blog. I can’t stop now or ever, I just can’t”
there’s a remarkable resilience that emerges within the MSA community. This resilience is evident in the heartfelt comments and shared experiences found on my blog copingwithMSA.com and Facebook groups dedicated to supporting those affected by MSA. Continue reading
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“Embracing Memories: Finding Light in the Shadows”
For so long, I clung to the notion of making memories for myself, as if they were tokens to be cashed in upon some distant horizon. I yearn to amass experiences, to craft a narrative of my own making that I could cherish in the twilight of my days. Continue reading
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MSA: Battling the Unseen Enemy with Courage and Compassion
At times, the weight of it all feels unbearable, and thoughts of ending my own life have crossed my mind. It’s hard to see the light at the end of the tunnel when faced with such overwhelming darkness. Yet, in those moments of despair, I find strength in the love of those around me. Continue reading
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“Embracing Empathy: Supporting Those Grappling with Suicidal Thoughts in Terminal Illness”
I can’t help but feel a deep sense of empathy. You see, I too am battling multiple system atrophy (MSA), and I understand all too well the physical and emotional toll it takes. It’s a relentless journey, filled with pain, frustration, and moments of despair. Continue reading
Living Beyond the Diagnosis 