Coping With MSA
-
Fighting Back Against MSA — One Therapy at a Time. Introducing SCENAR – Self-Controlled Energo-Neuro Adaptive Regulator.
On June 1st, 2024, I began a new chapter in my journey with MSA, exploring therapies that most people have never even heard of. My days became filled with a regimen of CVAC (Cyclic Variations in Adaptive Conditioning), BEMER (Bio-Electro-Magnetic Energy Regulation), and Nuenerchi. Continue reading
-
A Defiant Man’s War Against MSA: An Undefeated Demon
You ever feel like there’s a demon living inside you, ticking off parts of your body like it’s going through a grocery list? I do. It’s called Multiple System Atrophy. MSA—this relentless, fucking ruthless demon that leaves nothing untouched. It doesn’t care who you are, how strong you’ve been, how much you’ve fought. It’s undefeated…… Continue reading
-
A Poem – “One More Day”
One more day to punch this damn thing in the face, to wake up angry and full of vinegar, to rage at what’s being stolen from me, but still, still, to get up, to hope. Continue reading
-
A Poem: “The Resilient Soul” FuckMSA
In a quiet place, beneath a sky that never sleeps, There lived a soul, strong and free, yet caught in the grip of a cruel disease. MSA, they called it—a demon without mercy, A shadow that crept into life, stealing joy, leaving pain. Continue reading
-
Post 7 in a Series: Exploring Alternative Therapies With CVAC for MSA Symptom Relief: Introducing Nuenerchi
Nuenerchi is a therapy designed to restore the body’s natural electrical pathways, which are often disrupted by injuries. This disruption can hinder cell communication, causing various issues such as muscle dormancy and impaired function. Nuenerchi aims to restore these connections, enabling muscles to fire properly and activating the body’s natural healing mechanisms. Continue reading
-
“Get Busy Living, or Get Busy Dying”: A Journey with Multiple System Atrophy
Andy Dufresne’s words echo in my mind daily, serving as a poignant reminder of the choices we face, especially in the grip of adversity. For those of us battling Multiple System Atrophy (MSA), this choice is not just metaphorical but a literal crossroads we encounter every day. Continue reading
-
The MyTrial Series: Month 3 – A Season of Patience and Progress
One of the most fascinating aspects of my journey has been the skin biopsy I underwent. I recently received an update from the researchers: they have successfully grown fibroblasts from my skin cells. It’s amazing to think about how these tiny cells, which took a couple of months to grow, are now being stored in… Continue reading
-
Defiantly Opposing the Comment: “I’m not scared of dying, but I am scared of dying with MSA.” Fuck MSA: It Shall Not Win!
The fear of becoming a mere shadow of who we once were haunts us all. As one member of our Facebook group poignantly expressed, it’s the loss of quality of life and independence that makes this journey so excruciating. Continue reading
-
Post 6 in a Series: Orthostatic Hypotension and the Unexpected Benefits of CVAC Therapy
Imagine trying to go about your daily activities—simple tasks like getting out of bed, taking a shower, or even just standing up to cook a meal—only to be hit with a wave of dizziness or, worse, to lose consciousness Continue reading
-
Embracing Mobility with MSA: My Journey with “VanGo”
I want to share my story, not as a solution for everyone but as a beacon of hope. After much deliberation and consideration, we invested in a Class B Coachman LI3 van, affectionately named “VanGo.” This van has revolutionized my life, offering a newfound sense of freedom and security Continue reading
Living Beyond the Diagnosis 