Clinical Trials for MSA
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“Hope on the Horizon: My Take on the TAK-341 Clinical Trial for MSA”
Living with Multiple System Atrophy (MSA) is like navigating through a thick fog — you’re never quite sure what lies ahead. When I heard about the clinical trial for a drug called TAK-341, it was like a ray of light piercing through that fog Continue reading
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“Living with Hope: My Journey with Multiple System Atrophy and the Right to Try Law”
However, the reality has been disheartening. Despite the law’s intent, the actual process of getting drug companies to comply with it is incredibly challenging. Continue reading
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“The Battle Against MSA: Understanding and Combating Neurodegenerative Disorders”
My most recent findings have led me to focus on Synucleinopathies as the “mechanism” to base my fight for life on. Here’s why: Continue reading
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Dealing with Disappointment and Emotional Pain When Things (Seemingly) Fall Apart
So we commit to moving forward, not because it is easy, but because it is necessary. Our dreams may have been shattered, but not our spirit. Our fears, though realized, will not claim victory over our resolve. I am left with no choice but to persevere, to continue the search for a clinical trial designed… Continue reading
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Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023
The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the… Continue reading
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Fighting Fatigue: Building Energy Levels with MSA
In this post we will tackle the significant fatigue and lethargy of MSA. Discusses lifestyle adjustments, treatment options, and mindset shifts to reclaim as much energy as possible. Continue reading
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Coping with Multiple System Atrophy (MSA)
MSA is a “Mystery” to most people. A silent killer without a face. So little is known about it and those who suffer from it do so in relative anonymity with many of them feeling as though there is little hope. I want those people to know there is hope and there is a place… Continue reading
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A Promising Therapeutic Approach – Stem Cells
Ok, you pick yourself off the floor (For me, it was a little over a month), dust yourself off, and start the fight to save your life! Continue reading
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A Glimpse of Hope: Stem Cell Research Shines Light on Multiple System Atrophy (MSA)
For the past two decades, the outlook for individuals suffering from Multiple System Atrophy (MSA) has been nothing short of dismal. This rare and progressive neurodegenerative disorder, often misdiagnosed as Parkinson’s disease, has left many patients and their families facing a future marked by debilitating symptoms and limited treatment options. Continue reading
Living Beyond the Diagnosis 