Living Beyond the Diagnosis

Hello, fellow MSA warriors. Today, I want to talk about something that’s been on my mind—literally. Have you ever found yourself crying at a commercial, or laughing uncontrollably at something that wasn’t that funny? Maybe you’ve felt your emotions swing wildly, leaving you wondering, Is this just me, or is it the MSA?

Well, you’re not alone, and yes, it’s the MSA. Emotional changes are a common part of our journey with Multiple System Atrophy, and understanding why they happen can make them feel a little less overwhelming.

The Science Behind the Tears (or Laughter)
When it comes to MSA, the changes we experience aren’t just physical—they’re also neurological. Here’s what might be causing those heightened emotions:

1. Brain Changes
   MSA affects specific areas of the brain, like the cerebellum, brainstem, and autonomic nervous system. These regions aren’t just responsible for movement and basic functions; they also play a role in regulating emotions. When these areas are damaged, it can lead to emotional dysregulation. This means your brain might respond too strongly to emotional triggers or, sometimes, create emotions that don’t match how you actually feel.
2. Pseudobulbar Affect (PBA)
   Some of us with MSA may experience something called pseudobulbar affect. PBA causes sudden, uncontrollable emotional outbursts, like crying or laughing, that don’t necessarily match what you’re feeling inside. It’s not uncommon for someone with MSA to start sobbing during a lighthearted conversation or burst into laughter at an inappropriate moment. These reactions aren’t a reflection of your character; they’re a direct result of how the disease affects your brain.
3. Neurochemical Imbalances
   MSA disrupts the production and regulation of neurotransmitters like dopamine and serotonin. These chemicals are essential for mood stability. When they’re out of balance, it’s easy to feel overly emotional, sad, or even anxious. This imbalance can make the smallest things feel like a big deal.
   The Emotional Weight of MSA
   Beyond the biological causes, let’s not forget the emotional toll of living with this disease. Facing a progressive condition like MSA is hard. Here are some factors that might amplify our emotions:
   • Stress and Frustration: The physical challenges of MSA, like mobility issues and daily fatigue, can make even simple tasks feel monumental. It’s natural to feel overwhelmed.
   • Isolation: As our symptoms progress, we might find ourselves pulling away from social activities. The resulting loneliness can make us more vulnerable to emotional swings.
   • Uncertainty: The unpredictable nature of MSA’s progression creates a constant undercurrent of anxiety that’s hard to shake.
   Managing the Emotional Rollercoaster
   If you’ve noticed these emotional changes, don’t worry—there are ways to manage them. Here are some tips that have helped me and others in our community:
4. Talk to Your Doctor
   First and foremost, let your healthcare provider know what you’re experiencing. They may recommend medications or therapies to help regulate your emotions. In some cases, antidepressants or medications specifically for PBA can make a big difference.
5. Find Emotional Support
   Sharing your experiences with others who understand—whether it’s through a support group, a counselor, or a trusted friend—can lighten the emotional load. Just knowing you’re not alone can be incredibly comforting.
6. Practice Self-Compassion
   Remember, these emotional changes are a part of MSA’s impact on your brain. It’s not a reflection of your strength or character. Give yourself grace and patience as you navigate these challenges.
7. Explore Stress-Relief Techniques
   Activities like deep breathing, meditation, gentle exercise, or even journaling can help ground you when emotions feel out of control. Experiment with what works for you.
8. Stay Connected
   Even when it’s hard, try to maintain social connections. A quick phone call, a chat with a neighbor, or time spent with family can help remind you of the love and support that surrounds you.
   Did You Notice?
   The next time you feel like your emotions are running away with you, pause and ask yourself: Could this be the MSA talking? Understanding the “why” behind these changes doesn’t fix them, but it can take away some of their power. You’re not alone in this experience, and there are ways to manage it.
   Remember, fellow warriors: MSA may change how we express our emotions, but it doesn’t change who we are inside.

Let’s keep fighting, together.

~Coach~