On Father’s Day, I find myself reflecting deeply on the journey that has brought me here, especially as someone living with Multiple System Atrophy (MSA), a terminal disease that affects every aspect of my life. This day, more than ever, is a poignant reminder of what truly matters. For me, family is everything. The love, support, and moments we share are the threads that tell the story of my life.
The Significance of Raising My Kids
Raising my kids has been the most significant thing I’ve ever done. There’s a unique joy in seeing your children grow, learn, and become their own individuals. Despite the challenges that MSA has imposed, my role as a father (and step-father) remains my greatest achievement. Every laugh, every tear, every milestone – these are the memories that fuel my spirit.
Cherishing Time with My Loved Ones
Now, with MSA as a constant companion, the time I spend with my wife, kids, and grandkids has taken on an even deeper significance. These moments are what I live for. Each smile, each hug, each shared story is a precious gift. Time has become the most precious commodity, and I cherish every second.
A Wish for All MSA Families
To everyone out there battling MSA, whether you are a dad or have a dad, my wish for you this Father’s Day is to enjoy the hell out of this day. Celebrate the love, the bonds, and the memories. Despite the struggles, find joy in the presence of your loved ones. Embrace the laughter, the love, and the warmth that family brings.
A Place for Understanding and Support
Through this blog, Coping with MSA, I aim to provide the MSA community with a place to learn more about this mysterious disease. It’s a platform where we can share our experiences, find solace, and support each other. Understanding MSA is a journey in itself, and together, we can navigate its challenges.
The Fight for a Cure
My commitment will not waver until there is real help for MSA sufferers. Whether it’s a cure, disease-modifying treatments, or something to control its debilitating symptoms, I will continue to fight. At the very least, I hope to help others manage the symptoms that so drastically impact our lives. This mission is driven by love – love for my family and for everyone in the MSA community.
Finding Comfort on Father’s Day
This Father’s Day, I hope everyone with MSA, and those who comfort them, find the most comforting moments with their loved ones. Let’s hold onto the hope that together, we can make each day a little brighter, a little easier, and filled with the love and support that only family can provide.
As we celebrate this special day, let’s remember that despite the challenges, we have each other. Family is our anchor, our strength, and our reason to keep going. Happy Father’s Day to all, and may it be filled with love, laughter, and cherished memories.
~Coach~
Living Beyond the Diagnosis 
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