Living Beyond the Diagnosis

Coping with Multiple System Atrophy (MSA)

MSA: Battling the Unseen Enemy with Courage and Compassion

Living with Multiple System Atrophy (MSA) is like navigating through a labyrinth of pain, uncertainty, and acceptance. Every day brings its own set of challenges, testing not only the limits of my body but also the strength of my mind and spirit. As an MSA sufferer, I’ve learned to embrace each moment, finding solace in the love of my family and the hope that one day, a cure may be found.

Dealing with the relentless pain that accompanies MSA is a battle in itself. It’s like a constant companion, never giving me a moment’s respite. Simple tasks that were once second nature now require real effort, and the deterioration of my body serves as a constant reminder of the cruel reality of this disease. Yet, amidst the pain, there is a flicker of hope – hope that experimental clinical trials may offer a glimpse of a future free from suffering.

Acceptance doesn’t come easily when faced with the harsh truth that MSA is a terminal disease with no cure. It’s a bitter pill to swallow, knowing that my time on this earth is limited. But in the midst of this acceptance, I’ve found a new perspective on life. Instead of dwelling on what I cannot change, I focus on creating memories.

At times, it’s hard to see the light at the end of the tunnel when faced with such overwhelming darkness. Yet, in those moments of despair, I find strength in the love of those around me. Whether it’s taking one more trip to my favorite place or simply sharing a cup of coffee with a friend, these small moments of connection remind me that there is still beauty to be found in this world.

Belief is a powerful thing, and despite the odds stacked against me, I hold onto the hope that a cure for MSA is within reach. It may be a slim hope, but it’s enough to keep me going, one day at a time. And in doing so, I hope to set an example for my family, showing them that even in the face of adversity, it’s possible to find joy and meaning in life.

Living with MSA is a journey fraught with challenges and uncertainties, but it’s also a journey filled with moments of love, laughter, and hope. And for that, I am grateful.

~Coach~

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Coach

With over 30 years of professional experience in the real estate industry, I am a driven, creative, and strategic innovator for real estate technology. I have led the business side of data exchange efforts to lower costs, improve processes, and increase data transparency and sharing, using emerging technologies like blockchain and AI. As the EVP of Strategy at Openn North America, I oversaw the launch and growth of a revolutionary platform that enables transparent and competitive bidding for properties online, with the help of generative AI and conversational AI. I am also passionate about sharing my knowledge and insights with the global proptech community, as the Southern CA Regional Chair of FIBREE, the leading international network for exchanging knowledge between the real estate industry, the IT sector, and blockchain developers. Additionally, I am an advisory board member at TLCengine, a platform that calculates the true lifestyle cost of any home, and a former radio talk show host on “Keeping it Real Estate” Radio. My specialties include early product design and development, human-centered design, management, leadership, and training. I believe in the power of blockchain and AI to transform the real estate landscape and create value for customers and stakeholders.

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