Living Beyond the Diagnosis

Coping with Multiple System Atrophy (MSA)

Hope on the Horizon: A Journey to Mayo Clinic for the MSA Stem Cell Trial on Nov 1st 2023

Living with a terminal illness like Multiple System Atrophy (MSA) is a challenging journey filled with uncertainties. For those suffering from this rare neurological disorder, the search for effective treatments and a glimmer of hope can be a long and arduous one. Today, we bring you a story that is brimming with optimism as this MSA warrior prepares for a remarkable journey to the Mayo Clinic in Rochester, Minnesota, to participate in a groundbreaking clinical stem cell trial beginning in just 7 days! Nov 1st it all starts!

The Mayo Clinic MSA Stem Cell Trial: A Beacon of Hope

The Mayo Clinic has long been a pioneer in medical research and patient care. Their commitment to advancing medical science is now extending to those afflicted with MSA through a clinical trial that holds immense promise. The trial, known as “Clinical Trial for Multiple System Atrophy Using Autologous Mesenchymal Stem Cells,” aims to explore the potential of stem cell therapy in treating MSA.

Understanding the Trial

MSA is a rare neurodegenerative disorder that affects various body functions, including balance, movement, and autonomic functions. Currently, there is no cure, and treatment options are limited to alleviating symptoms. The Mayo Clinic’s clinical trial offers a ray of hope by investigating whether autologous mesenchymal stem cells, derived from the participant’s own fat cells or bone marrow, can slow down, or even stop, the progression of MSA and improve overall quality of life.

What to Expect When Participating

Participating in a clinical trial is both a courageous decision and an opportunity to contribute to medical progress. For those embarking on this journey, here’s what we can expect:

  1. Medical Evaluation: I will undergo a comprehensive medical evaluation to determine my eligibility for the trial. This assessment ensures that the treatment is safe and suitable for me.
  2. Stem Cell Collection: If deemed eligible, I will undergo a procedure to collect my bone marrow-derived stem cells. These cells will be processed and prepared for infusion.
  3. Stem Cell Infusion: The processed stem cells will be reintroduced into my body through an intravenous infusion. This step is designed to promote tissue repair and reduce the progression of MSA. It will begin 4-6 weeks after they are harvested and happen every 2 months thereafter for a year.
  4. Monitoring and Follow-Up: Throughout the trial, I will be closely monitored by medical professionals. Regular check-ups and assessments will track the progress of the treatment and any changes in my MSA symptoms.
  5. Hope and Support: The journey may be challenging, but I am not alone. I will receive support and care from the dedicated medical team at the Mayo Clinic and the love and encouragement of my family and friends.

A Journey Fueled by Hope

As I prepare for this remarkable journey, my excitement is palpable. The Mayo Clinic’s stem cell trial represents a beacon of hope not only for me but for the entire MSA community. It’s a testament to the unwavering spirit of those who refuse to give in to the limitations of their condition and continue to seek innovative solutions.

We’ll be following this journey closely and sharing updates along the way on this Blog. We will have videos and pics from the Mayo Clinic, quotes from the staff, and hopefully some interviews with the administrators of the trial. You can help by sending positive thoughts and wishes for a successful and transformative experience at the Mayo Clinic. Together, we can look forward to the day when MSA is no longer a life sentence, but a condition with effective treatments and, ultimately, a cure.

#HopeForMSA #MayoClinicTrial #MSAWarrior #StemCellResearch #MSAawareness #ResilienceInAdversity #MSA #MultipleSystemAtrophy #Parkinsonism

[Link to the Mayo Clinic MSA Stem Cell Trial]: https://www.mayo.edu/research/clinical-trials/cls-20523723]

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Coach

With over 30 years of professional experience in the real estate industry, I am a driven, creative, and strategic innovator for real estate technology. I have led the business side of data exchange efforts to lower costs, improve processes, and increase data transparency and sharing, using emerging technologies like blockchain and AI. As the EVP of Strategy at Openn North America, I oversaw the launch and growth of a revolutionary platform that enables transparent and competitive bidding for properties online, with the help of generative AI and conversational AI. I am also passionate about sharing my knowledge and insights with the global proptech community, as the Southern CA Regional Chair of FIBREE, the leading international network for exchanging knowledge between the real estate industry, the IT sector, and blockchain developers. Additionally, I am an advisory board member at TLCengine, a platform that calculates the true lifestyle cost of any home, and a former radio talk show host on “Keeping it Real Estate” Radio. My specialties include early product design and development, human-centered design, management, leadership, and training. I believe in the power of blockchain and AI to transform the real estate landscape and create value for customers and stakeholders.

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